Mission & vision
Standardise the description of TOS, then improve its treatment.
Thoracic outlet syndrome sits between specialties. A patient may be seen by a vascular surgeon, a thoracic surgeon, a neurologist, a physiotherapist or a pain clinic, and each discipline records the condition in its own language. The result is a literature made largely of single-center series that cannot be pooled.
The collaborative was founded to remove that obstacle. Our first task is a shared vocabulary: agreed subtype definitions, an agreed minimum dataset, and agreed outcome measures. Our second is to use that vocabulary — through a shared registry and multicenter studies — to answer the questions individual centers cannot answer alone.