Ongoing multicenter studies
Public summaries are shown here. Protocols, case report forms and the participation request live in the members’ area; each study has an assigned coordinator who reviews requests to join.
A prospective observational study of conservative and surgical management, with patient-reported outcomes at 3, 6 and 12 months using an agreed core outcome set.
| Design | Prospective, observational |
| Target | 600 patients, 25 centers |
| Coordinator | Research Chair |
A multicenter comparison of early versus delayed first rib resection following catheter-directed thrombolysis for effort thrombosis, with vein patency and symptom burden at one year.
| Design | Retrospective, multicenter |
| Target | 300 patients, 18 centers |
| Coordinator | Registry Chair |
An international case series describing presentation, imaging findings, reconstruction technique and limb outcome in arterial TOS associated with cervical rib or first rib anomaly.
| Design | Retrospective case series |
| Enrolled | 142 patients, 21 centers |
| Status | Closed to new centers |
Comparison of structured post-operative rehabilitation protocols across centers, examining return to work, return to sport and residual symptom scores.
| Design | Prospective, observational |
| Target | 400 patients, 20 centers |
| Coordinator | Rehabilitation Chair |
Propose a study
Any member may submit a research proposal. Proposals are reviewed by the research committee, which either approves them, requests changes, or declines with a written reason. You can follow the status of your proposal inside the members’ area and you receive an email at every step.
Policies
How collaborative studies are written up, who approves the manuscript before submission, how the collaborative is named in the byline, and how preprints and embargoes are handled.
Criteria for named authorship and for collaborator listing, the contribution thresholds for participating centers, and the order in which centers appear.
Who may request registry data, what the request must contain, how requests are reviewed, and the conditions attached to any data release.
Statistical support
The collaborative offers statistical advice to members planning a study — on design, sample size, outcome selection and analysis plan. Requesting advice early is far more useful than requesting it once recruitment has finished.
Data submission
Members with a confirmed affiliation to a listed center submit one structured record per treated case through the members’ area. Records are pseudonymised: no names, no national or hospital identification numbers, and no exact dates of birth. Each center keeps its own local case code; the key that links that code to a patient never leaves the center.